Kidney Function

Life seems to be hurtling past at a great velocity. Days and weeks blur and blend together, leaving me wondering, really, where does the time go?

We’ve now just about reached the first anniversary of Gavin’s return to wellness. I hesitate to use the expression “wonder drug,” but Gav’s medication has been life-altering for us. He hasn’t had a visit to the ER since last January. Going back over old posts, I see that February of last year was horrendous. Below is Bean’s report card from December of this school year. He went from missing over 20 days of school in the first term of 2014, to missing none in 2015. None!

6 years ago today, my wonderful son entered the world and changed my life forever. Today we celebrate all that he is and all that he has overcome in his few short years on Earth. Despite the seemingly endless challenges he’s had to face, he remains an (almost) normal 6 year old. He’s active, unbearably sweet, stubborn and prone to tears. He loves LEGO and Star Wars and art and hockey. He’s immensely curious about the world around him and loves to learn and explore. He lives in the vast universe of his imagination, playing roles and creating stories.

First things first. After a very difficult day of blood, sweat and tears, we got Gavin’s scans done and the word has trickled down that they are CLEAR. After weeks of crushing anxiety and worry, I feel feather-light to know, with absolute certainty, that everything is fine, fine, fine.

Getting these scans done was a bit of a feat.

Last week I called MRI to confer with them about the “pneumonia situation.” I tried to dance around the issue by calling it a lung infection. The nurse I spoke with rather sharply asked, “Do you mean he’s got pneumonia?” Sigh. Yup. When I admitted that an x-ray had revealed pneumonia, the nurse told me in no uncertain terms that the anaesthetist would not agree to sedate him. But when I got teary and explained that our appointment was over a month overdue, she relented and made a brilliant suggestion. “Is he old enough, do you think, to try going into the machine unsedated?”

Summer is slipping through my fingers as it always does in Canada. Winter is eternal and the short weeks of summer fly past before you’ve got a chance to breathe. I have not been blogging much of late because we’ve been out enjoying the ridiculously hot weather we’ve been having, and spending a lot of time at Bubby and Da’s cottage in Muskoka.

There have been a few changes of late in Gavin’s medical status, which those who follow his story or are going through treatment with their little ones would be interested to know.