Today has been rocky. Many procedures and scans, and Gav spent the day mostly sedated and only opened his eyes a smidge a couple of times. This afternoon there were some terrible, terrible moments, but he is now very stable and showing very good vitals. Unfortunately, his oxygen needs have increased yet again.
The biopsy has been put off until tomorrow. We are frightened, but believing whole-heartedly that Gavin has the will and strength to get through the surgery tomorrow.
Craig and I are drained and will try to get some sleep, leaving our boy with his night nurse Ann, to watch over him and protect him.
I am so grateful today to Nicole and Mike for dropping by and bringing goodies, and also to the amazing Shawna, who brought by an incredible meal for us to share. The first food that has looked good to me in a long time.
I am so thankful for all your prayers, your hope, your love, your light. Please keep us in your thoughts tonight and tomorrow.
I was not raised as a Catholic but Gavin has been baptized in the Catholic church so I’m sure St. Jude won’t mind if I petition him on Gavin’s behalf. St. Jude, patron saint of hopeless causes, send hope and healing to our Bean. He is in great need.
Please continue to walk this road with us. I just know the love you are flooding towards him helps him take the next breath.