By erica on December 10, 2014
Here’s an overdue announcement: On October 29th, 2014, this wondrous little person entered the world. Her name is Skye Florence. She is beautiful, calm and sweet. She is a patient darling, but doesn’t hesitate to let us know she’s unhappy if she needs to. I am glad that already she knows how to speak her […]
Posted in Uncategorized |
By erica on September 3, 2014
6 years ago today, my wonderful son entered the world and changed my life forever. Today we celebrate all that he is and all that he has overcome in his few short years on Earth. Despite the seemingly endless challenges he’s had to face, he remains an (almost) normal 6 year old. He’s active, unbearably […]
Posted in Cyclic Vomiting Syndrome, Kidney Function |
By erica on August 10, 2014
I have very foggy recollections of the summers of my childhood. They stretched out forever, endless days of lazy, unscheduled lovely boredom. There was usually an un-airconditioned road-trip from our home in New York to Toronto, which meant a stay at my grandmother’s house, play with my cousins, and a camping holiday in the wilds […]
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By erica on June 27, 2014
An early-morning conversation with Gavin: G: Why do you wear this golden ring? (pointing to a plain gold band on the ring finger of my right hand.) Me: It was Bubby’s wedding ring. She gave it to me for good luck when you were sick. G: Did you have good luck? Me: Yes, because you […]
Posted in Genetics |
By erica on June 20, 2014
Today is our D-day anniversary. Four years since the words, “Gavin has a brain tumour,” utterly exploded our world into thousands of pieces. Four long years of putting those little pieces back together in a way that makes sense, although nothing has ever been the same, nor will it ever be. I learned yesterday that […]
Posted in MRI |
By erica on June 16, 2014
Disclaimer: This post is deeply personal, and not for the medically squeamish. No, your eyes are not deceiving you. Yes, Gavin’s little sister has currently taken up residence. She’s been baking away for 20 weeks now and making me feel elated. And miserable. And excited. And fearful. She will make her grand entrance this autumn. […]
Posted in Genetics |
By erica on May 8, 2014
“Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain.” – Vivian Greene The above quote has come across my path 3 times in the last couple of days. Days, which have been, in all honesty, difficult. I am trying – trying – to come to a place of acceptance […]
Posted in Uncategorized |
By erica on April 11, 2014
My son’s skull no longer has a large hole in it. His surgery on Wednesday was a success and he is recovering well. I want, as always, to offer thanks to all my friends and family who sent messages of love and support and who have been with me not just during the last two […]
Posted in Uncategorized |
By erica on March 20, 2014
As ever, I’m astonished at how quickly time sprints away, and here we are at the first day of spring. Which in Toronto means that it’s grey, chilly, and the dirty old snow and ice left over from this ridiculous winter is slowly melting to reveal a disgusting debris of cigarette butts and plastic bags […]
Posted in Uncategorized |
By erica on February 13, 2014
“Well, it looks like you managed to stop him from going over the precipice this time,” my mother said, quite dramatically to me the other day. (I know where I get my flair for theatrics from.) We were on the phone, and I was filling her in on the details of Bean’s latest illness, which […]
Posted in Uncategorized |