Gavin’s official diagnosis is Cribriform Neuroepithelial Tumour, also known as CRINET. It is a brain tumour that is believed to behave like AT/RT but differs in that it is a non-Rhabdoid tumour.
CRINET was first discussed by Dr. Martin Hasselblatt and his colleagues in 2009, in a paper published on PubMed, which focuses on the two originally identified cases. Gavin is, as far as we know, perhaps the fifth diagnosis of CRINET made world-wide.
This CRINET paper (PDF) was published in September 2011 by the pathology team at the Hospital for Sick Children in Toronto, and it discusses the pathology of Gavin’s tumour, and compares it to the first two diagnosed cases. This paper is also available on PubMed.
We offer many thanks for the difficult and intensive work that pathologists do. You greatly advance our understanding, and although your work is unsung, it does not go unrecognized.
Hello I see your child was diagnosed with a CRINET tumor. My pathology just came back saying I have a CRINET tumor as well, I was wondering if we could connect and talk.
Thanks,
danielle