If you have any personal comments or questions, please feel free to email me at:
I am trying to be a little better these days with correspondence.
hi erica, it was lovely to reconnect today in the park. Should you ever want to be in touch – my email is firstname.lastname@example.org.
Please know that we are around in the neighbourhood should you need anything or fancy a playdate or a coffee, whatever!
Anyway, come spring we are usually in the park after ‘school’ 😉
My niece was dx with ATRT last November she is on the European protocol. She has had surgery, radiation and high dose chemo to her brain. She had been doing well up until last week when there discovered new tumors in her spine. Just wanted to know how your son is doing we are looking for positive story’s and long term atrt relapse survivors. any info at all would be great. We were also looking at alternative treatment ie diet have you went down this route?
Best wishes to your son
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