Annual Update

Annual Update

My son is currently in Australia without me. He’s with his Dad, of course, visiting our family, but it feels slightly surreal that I feel safe enough for him to be 15,558 kilometres away from me. Over the past couple of years, the Bean has grown so much in independence and maturity. He is learning […]

The Ocho

The Ocho

It always stuns me, slightly, to return to this blog and see how much time has passed since I last posted. If I’m not posting here, it’s generally because life is busy, rushing past at the speed of light, and I’m hard put to find the time to breathe, let alone blog. June is always […]

This kid.

Wishes

When I blow out birthday candles, break a wishbone, throw coins in fountains, or see the first star of the evening, like a child, I close my eyes and make a wish. My wishes are always the same. Of course. So with a heart full of the most immense gratitude, I can declare that my […]

MRI x Two

MRI x Two

It’s been a big week. Some notes: Gavin had his MRI last Saturday, which was his first to be done annually. I haven’t had any news from that scan. It wasn’t the smoothest day for my boy. He’s deeply traumatized by the ongoing pain of IVs, and unfortunately had to act as pincushion for an […]

The Horse

The Horse

This post was written in December, 2016. There is a story behind this horse. This horse and her Barbie friend were given to Skye by a woman I admire deeply and hold in the highest regard for the level of care she gave my Gavin whilst he was in residence on the bone marrow transplant […]

Relief, the Mirror of Anxiety

Relief, the Mirror of Anxiety

My cell phone rang last Friday morning. My phone doesn’t ring much, as I communicate with most people in my life via text or email. For a moment, I looked in shock at the 813 prefix, a million thoughts careening through my mind, knowing that the news I was about to hear would either rocket […]

The Looming Feeling

The Looming Feeling

I’m doing busywork today. Organizing old papers. Vacuuming. Fixing a picture-frame. Anything, really, that might distract me from the thought of Skye’s MRI on Thursday, July 21st.  This will be her very first one, and I’m dreading it. Contemplating Thursday morning has my abdomen tied up in knots. Do I have reason to believe that […]

Six Years

Six Years

Gavin, Skye and I spent the morning in the neuro-oncology clinic to go over the results of Gavin’s most recent MRI. Once again, I’m overjoyed to report that Gav’s scans were clear. This means that we have another 6 months to go until the next one, at which point they will become annual. SIX. YEARS. […]

At the Speed of Light

At the Speed of Light

Life seems to be hurtling past at a great velocity. Days and weeks blur and blend together, leaving me wondering, really, where does the time go? We’ve now just about reached the first anniversary of Gavin’s return to wellness. I hesitate to use the expression “wonder drug,” but Gav’s medication has been life-altering for us. He hasn’t […]

The Days are Long, but the Years are Short

The Days are Long, but the Years are Short

Are there more grown-ups or kids in the world? – Bean My son asked me that a few days ago, and I spent a couple of minutes explaining that there are more grown-ups in the world, simply because we all spend far more of our lives being adults than we do being children. Plus, we’re […]