Baby Steps

Alright. The messages I have received from all of you lovely people have had a common theme: Patience, Erica! I hear you! I admit that I have a teeny tiny tendency to look at things in the darkest possible way. Our Craig is a beacon of optimism to my sea of negativity. But I do always get over myself and get back on track. That is one of my good qualities.

Bean has made a lot of progress this weekend. Being home has definitely worked for him and I think a longer stay in hospital would have been detrimental rather than beneficial.

Yesterday he sat  up for most of the day, propped up on cushions and played in his play area. He wasn’t quite up to standing but it was a big improvement from being flat on his back from Wednesday to Friday. He was pretty playful yesterday amidst bouts of total irritability, so we saw some wild behaviour and mood swings, which were sometimes hard to handle. He seems to be having a really hard time controlling himself emotionally, and will resort to fits of screaming to express himself. Needless to say, it is a bit draining.

Today, however, we saw leaps and bounds. He sat totally upright on his mats and even managed to wobble a few steps to retrieve items he was after. Daddy decided to push him a little bit today and he was ready. A couple of times he stopped and clutched his head, or needed to lie down, but for the most part he was up all day. He was able to sit at the table and eat dinner for the first time since we got home, and also came for a ride in the car to run errands and eat ice cream at the new ice cream shop up the road.

No vomiting, taking his first steps in six days, and reduced headaches. Only a couple of intense screaming fits. We’ve done well today! All in all making moves in the right direction.

As for his other behaviour, that seems to be calming down too. He seems to be getting his focus back and is communicating much more clearly. I know I shouldn’t be so hard on my poor little man, he has just had brain surgery, and any change in the brain is bound to affect his behaviour.

5 responses to “Baby Steps”

  1. Aunt Bev

    Erica, it must have been scary to watch the change in Gavin after surgery, but it looks like Gavin has make huge strides today, and I believe it
    will get better day by day.

    Sending our love & prayers to all of you.

  2. pauline

    So delighted to see this update – God bless his brave little heart , he is already showing energy in leaps and bounds … ice cream, walking, sitting at the table for dinner. Of course yesterday was so difficult, such a responsibility even taking Gavin home, and sleep deprivation doesn’t help any situation.

    Here’s to the relaxing summer the three of you need – Keep up the progress Gavin! xoxo

  3. Aunt Karen

    Gavinator comes though again!!
    oooxxx to all!

  4. Auntie Melanie

    I cannot even imagine – I’m so happy to see that things are slowly improving. As always Gavin proves that he is a BOUNDER!!! – He bounds back!!! xoxox

  5. natalia

    so glad to hear about G’s progress and healing…we have been praying for him
    I don’t know if you are up for the thursday night thing, but we are coming out today
    give him a squeeze for me…and here is one for you, mama

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