I don’t even know how to write this. Just when I thought all looked well for a summer of relaxation, yet another bomb gets dropped.

I had an unsettling call from our neurosurgeon this morning, and I’m still reeling. Gavin has quite a large bulge on the back of his head where his skull doesn’t quite close. The surgeons were unable to repair it entirely after last year’s surgery. There has been speculation about what has been causing this bulge, the most likely candidate being fluid. However, since all seemed well, we all agreed to leave well enough alone.

Unfortunately, it appears from this latest scan that a small part of Gavin’s brain is growing outside of his skull. What this yet means, we don’t know. Our neurosurgeon has not seen this before, so it is quite unusual. We don’t yet know what our options will be, and although Dr. Dirks was quick to assure me that this is not an emergency scenario, it very much feels like an emergency scenario.

I am in complete shock. We are meeting with Dr. Dirks tomorrow morning to discuss the options and potential risks. I feel sick thinking about it.

Will post tomorrow with the outcome. Please keep us in your hearts and prayers tonight.

17 Responses to “News”

  1. Susannah says:

    Oh Erica. I am so sorry to read this. My heart sank to the floor. My thoughts are you with you and Gavin. Will light a “Gavin Wish Candle” tonight at supper. We love you and are here for you. xooxoxox

  2. Tiffany says:

    Oh Erica my heart aches for you reading this. Of course you’re in shock, try to stay strong and calm and hopeful for what options will be discussed tomorrow. You, Craig and sweet strong Gavin are in all our hearts.

  3. Martin says:

    Erica, try to keep calm and discuss with your neurosurgeon if any actions need to be taken. After all: it seems that this is a MRI finding that (at least at present) does not cause any symptoms.
    Take care, Martin

  4. Carolyn says:

    Dear Erica,
    I am thinking of you and the roller coaster you are all on.
    He is a strong boy with a lot of fight and you are strong too.
    Love to you and though we don’t know much yet,
    We know you guys are surrounded by love and support.
    Xoxo c
    Big hugs to you all and see you Friday.

  5. Lacey says:

    You are in our thoughts xoxoxoxo

  6. Aunt Karen says:

    I’m sure you’re saying “Why?”, and are feeling a little angry too. I am. But we can’t direct that anger at anyone. We have to channel its vigour into positive feelings. That’s all we can do. The rest is up to our wee Gavin and the docs. Hold fast. Believe that everything will be all right. love you.

  7. Camilla says:

    Honey, I am so sorry to hear this, it is unbelievable that you are dealt yet another blow. I am thinking of you and praying that everything will be ok. Sending you all my love and support. Stay strong and hopeful.
    Lots of love, C

  8. Samantha says:

    Keeping Gav in my thoughts and prayers tonight. Praying for a simple solution.

    Sam xoxo

  9. Sarah and Evan says:

    We’re thinking of all three of you and wishing for good news tomorrow.

  10. Auntie Melanie says:

    Sending along positive thoughts for Gavin and you guys! – Stay strong, all of you can, as you have already proven. Thinking of you xoxoxox

  11. Lori says:

    Erica, my thoughts are always with you and Gavin. I pray there is a solution and some way for you all to move forward with a new plan of action. I send positive thoughts and wishes your way. God bless you all!

  12. naomi says:

    I can only imagine how upsetting this is, take a lot of deep breaths and stay as positive and hopeful as you have been in the past…. Gavin is as miraculous as they get! Lots of love to you! XOX

  13. pauline says:

    Love and prayers and positive thoughts for your ordeal tomorrow -God bless all of you – lots of love pauline xoxo.

  14. Suzanne says:

    Sending positive thoughts your way, Erica!! Gav has been a total champ all the way though and no doubt he will tackle this as well!! Love to all of you. xxoo

  15. sarah says:

    just read this. we will focus on only good outcomes for gavin and peace of mind for his beautiful and loving family. love you guys.

  16. Aunt Bev says:

    Erica, our thoughts and prayers with you tonight, and much love to all of you.

  17. lisa says:

    You area amazing, Erica! So strong. Stay positive and let me know if I can do anything at all. Sending lots of love.

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