Gavin is sleeping peacefully under sedation for the first time in many days. No oxygen mask slipping off and plunging him into desat. As Craig said in the previous post, things seemed to go downhill very rapidly this afternoon. His nausea was worsening and he vomited continuously for the whole day, but was asleep for the most part as we had him on Ativan.
We were forced to increase his oxygen needs earlier in the day after a terrible night of vomiting, and then found this evening that even with the oxygen quite high he was no longer maintaining decent sats. CCRT came to examine him again and finally agreed it was time to go. The doctor told me quite calmly that Gavin was nowhere near a true emergent situation but it was time to take action before we reached the critical point.
Everything was organized fairly quickly and we went downstairs to Gavin’s new room in the ICU. He was exhausted and irritable from this long struggle, but still wanted to watch a DVD in bed. Once there the team set everything up and sent us out of the room while they sedated and intubated him.
Craig and I went to our old haunt, the CCU waiting room, and both wept for our baby. A little while later one of the doctors and then a nurse came out to tell us that the intubation had gone well and that he was soon to be taken to CT. We stood in the hall waiting for them to pass so we could hold his tired hand on the way by. The CT was done to determine that there was nothing happening in his brain, no problems with shunt, no hemorrhages, and no new tumours. Our staff doctor came out after a few minutes to tell us that, as far as he could tell, the scan was clear. We are breathing a massive sigh of relief on that but awaiting the final report.
Bean was then returned to his room to have several other procedures done which they need to do in the ICU. I will spare you the gory details. We were then allowed to come in and be with him for a little while. He looks better than he has in many days, as he breathes softly and slowly with the help of the respirator. We did not want it to come to this, but now that it has I am at least thankful that he can have a rest.
We then spoke to anesthesia about the lung biopsy which will go ahead tomorrow. This is still the only way to determine what is wrong with his lungs and heart. We are now in a very high risk situation. We know that there could be many complications of this surgery but must put our faith in the surgeons to do the best job they know how. The experts of this hospital are weighing in on the case. Once we have a diagnosis, steps can be taken for treatment.
Things remain so uncertain. I’m calling out to our guardian angels to protect him in his hour of need. I want to ask everyone reading this to say a powerful prayer for a successful surgery tomorrow. Meditate on healing for us and a solution to this problem. Get together with friends and family and take a few minutes to focus your energy in Gavin’s direction. Tell everyone you love today how much you love them, and remember when your kids are annoying you how wonderfully precious they are.