Gavin reached engraftment today, which meant that we could leave the room for the first time in 11 days! Yes, it took exactly the same time as last time, which was slightly strange, but a relief to escape and go for a walk.
We went for a walk in the halls and got to visit with Da outside in the lounge. Gavin got pushed around in a toy car, (yes, trailed by IV stand, rather awkward) and stood up for more than an hour playing. The stamina of this child amazes me.
In the early evening an audiologist made a surprise visit to the room to test Gavin’s hearing. We only did part of the test but I was elated to find that his hearing still tests as completely normal. We will do a more comprehensive test later and may see that he has lost some high frequency hearing, but I am accepting these results gladly. I cried grateful tears on his beautiful, bald head.
Tomorrow morning is GFR day, which is never fun as it begins with IV insertion first thing in the morning.
We are still on track to go home later in the week for a couple of days.
Gavin. Will. Be. A. Survivor. i feel this….but what a journey! Imagine yourself in a bubble of comfort, healing and love. So hard to imagine what you’re going through, but I know you will persevere. I’m sending my own “aura” to surround Gavin and keep him safe. Love you guys. And Bubby and Da too.
What a great blog entry to read first thing in the morning. Hugs and kisses to you three.
All our love
Susannah, Rene, Grace
Yay, you guys!! We can’t wait to have you all over for some fun!!
Give Gavin hugs from Lacey and Phil, and a big, birdy kiss from Gus!
So happy to read this amazing news! Crossing our fingers for your journey home for a bit. Much love, Sarah